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• Pathologising is expected of us
• We do not need to do anything active to be experienced as
pathologising
The context we work in sets us up to be experienced
as disempowering
The expectation of being pathologised (i.e: understood
in terms of deficit and dysfunction) held by many people can function
as a barrier to accessing care and frame perceptions of our interventions.
At the time of seeking help from mental health services they often
feel disempowered, experiencing their own knowledge and resources
as overwhelmed and there is often a sense of relief if we take control
in a paternalistic manner. There is a prominent role for judgment
and pathologising even in general discourse. This can be seen in
newspaper accounts blaming parents, condemning modern youth, politicians,
administrators, etc. A group of people will commonly be more easily
able to list ten of their faults than ten good points. Some families
specifically seek pathologising of an identified patient.
Part of the set up which leads people who come
to see us to expect to be told, not expecting their views to be
respected lies in the predominance of 'telling' over 'listening'
in common conversation. Much conversation consists of people putting
forward their views and waiting for a gap to do more of this, rather
than listening. Those with more power talk more, have their jokes
laughed at more, are paid more attention, challenged less. Because
of the risk that a conversation where people holding different ideas
can deteriorate into battle for dominance people commonly will not
express contrary ideas, particularly if experiencing themselves
as holding a lesser share of the power. Thus a person seeking psychiatric
help is more likely to expect to be told and hesitate to put their
views forwards.
There are also popular beliefs that psychiatrists
have special powers and will find madness/pathology lurking within
people which they might otherwise be able to keep hidden. There
are some roles which feed into these concerns. Mental health services
have responsibility to identify and address risk, to self, others
and care and protection issues for children. This means we cannot
afford to confine ourselves to areas people discuss comfortably,
to focus only on strengths and achievements. To fulfill the expectations
placed on us we need to access people’s darkest thoughts and
moments. In order for us to make the effective treatments we have
available it is important to identify illness syndromes despite
the stigma involved in attaching a label of mental illness, the
sense of spoiled identity.
Particular roles which focus negative perceptions
include instituting the Mental Health Act, prescribing and administering
medication and compulsory care. Maintaining optimism is challenging
in mental health service work. We usually see the least resourced
people, and as they engage with their resource they will often move
out of our services. Thus, the people we have the most contact with
are those who do not manage to move out of our services.
Thus, mental health clinicians do not need to do
any active pathologising, undermining or spirit breaking for the
person to feel it. If we go with the flow it is likely some pathologising
and undermining of personal agency will happen. Add strengths and
stir is not enough (Rapp 1998). If we are to avoid being experienced
as pathologising and spirit breaking we need constant attention
to and skills for, interrupting the flow.
Fragility of holding of
personal knowledge from a patient role
• People consulting us are often feeling overwhelmed
• What we offer can be experienced as dehumanizing and spirit
breaking
• We need to take some responsibility for supporting people
to bring their knowledge forward
Emanuel and Emanuel (Emanuel and Emanuel 1992) in their classic paper
on models of physician-patient relationship, identified the option
of working 'with the patient to reconstruct the patient’s
goals and aspirations, commitments and character' (p. 2222) the
patient themselves may not be consciously aware of. However they
described physicians as unlikely to have the skills or time to do
this, thus physicians may unwittingly impose their own values and
the patients, 'overwhelmed by their medical condition and uncertain
of their own views, may too easily accept this imposition.' (p.
2224). This same issue contributes to the experience some people
describe, of mental health services as disempowering, deficit-based
and spirit-breaking. Much of mental health practice, such as diagnosis,
use of biological treatments and the medical model, is experienced
as inherently disempowering (Rose and Black 1985) (Townsend, 1998). Patricia Deegan (1990), coming from a consumer perspective, describes
mental health services as dehumanising and depersonalizing. From
the recovery perspective our work is described as 'spirit-breaking'.
Charles Rapp (1998), in advocating the Strengths Model, decries
our dominance of deficit model, blaming the victim, etc, and described
our work as 'oppression dressed up in the clothes of compassion'.
The British Journal of Psychiatry published an
editorial by William Faulkner (Faulkner and Thomas 2002) stating:
“the dominant paradigm in psychiatry renders
the views of people with mental illness invalid and negates the
person as an individual.”
This focuses on the effect of being subject to
psychiatric forms of description. A doctor visiting a psychiatrist
in the role of a patient described this experience.
“I went because I thought I was having
a few problems. And he told me I was depressed and that I needed
antidepressants and I was devastated and I remember coming out
of that thinking ‘God I didn’t realise it was this
serious’ … it felt like I had my feet taken out from
underneath me and it kind of felt a bit like I’d had my
power taken away … I guess the thing I didn’t do…
I didn’t argue against it. I didn’t argue with him
because he knew.”
In order for people to experience contact with
mental health services as empowering and collaborative rather than
disempowering and colonizing we need skills in bringing forward
people’s knowledge and resources. |